Improving the lives of those who suffer from Chronic Fatigue Syndrome

By Planning, Researching, & Executing
We'll Reach Our Goal

The Chronic Fatigue Syndrome Foundation or CFS Foundation, is to serve as the major resource for available treatments, research, and education of the syndrome. In the United States alone "between 836,000 and 2,500,000 individuals of all ages, races, and sexes are believed to be afflicted with ME/CFS, with millions more afflicted by ME/CFS worldwide, and the vast majority of individuals with ME/CFS are undiagnosed or misdiagnosed" it was published by congress in 2018. We are planning to work with lobbyists to make sure the needed funding gets allocated to research ME/CFS. Whereas the Health and Medicine Division of the National Academies of Sciences "HMD" has noted a ‘‘paucity of research’’ on ME/CFS and that ‘‘more research is essential’’; individuals with ME/CFS struggle to find doctors who are willing and able to care for them and ME/CFS is included in less than 1⁄3 of medical curricula" We are commit to provide ready access, for patients, and those close to the patients who get first hand experience on the debilitating chronic disease. We will provide education to patients and their families, health professionals, the public, corporates and the government, to make sure Chronic Fatigue Syndrome "CFS" is taken serious, and to help overcome the stigma about sickness. We will ensure support for broader and better access is provided to those with Chronic Fatigue Syndrome.

The Chronic Fatigue Syndrome Foundation or CFS Foundation, doesn't have tax exempt 501(c)(3) status, we are planning to apply soon to be considered by the IRS, in the midtime we will try to partner with an Organitation to be able to provide the exeption to our supporters

Power by desire

And The Need for a Normal Life

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Glogal Community

To Share, Learn, & Adapt from Experinces

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To Ensure Success

We Must Do Studies & Document All Information

Because We Have a Plan

Our Best Attributes

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Focus

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Relentless Research

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Financial Independence

what you get ?

Benefits

Reliable Information

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You get to share and compare experinces with thousands, in simmilar situation

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Privacy is key and we will protect your identity, is up to you, how much you want to share

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Available 24/7 and can be access from everywhere

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All the information is decentralized

Download DOCUMENTS

Read Our Documents

Here is our full documents that help you to understand about us.

CFS Foundation's Ethics
User's Code Of Honor
Privacy Policy
Terms of Agreement
TIMELINE

Road Map

Our team is working to archive success

2019 Q1
Finilize a Website
  • Develop guidelines for Users
  • Initiate a database
  • Start assembling a team
2019 Q1
Reach Out to Political Influencers
  • Initiate a request to support the development for a congressional bill to get Federal Funding for a research center dedicated to Chronic Fatigue Syndrome and recovery facilites for patients
2019 Q1
Start the Design of an Application to improve patients lives
  • Initiate a Draft with basics needs
  • Assemble a team and schedule for the project
2019 Q1
Get Temporary 501(c)(3) organization Status and Apply for Permanent One
  • Hire Grants Professionals
2019 Q2
TBD
  • TBD
  • TBD
2019 Q3
TBD
  • TBD
  • TBD
2019 Q4
Release a Beta Test for a Trial Period and Incorporate Users Needs
  • Private closed beta final trial
  • Open beta launched to public
2020 Q1
TBD
  • TBD
  • TBD
2020 Q2
TBD
  • TBD
  • TBD
2020 Q4
Establishing Global User Base
  • Expand to the World
  • Apply for support from the United Nations to gain recognizion of Chronic Fatigue Syndrome as a Real Danger to Societies
2020 Q1
TBD
  • TBD
  • TBD
Founder

Laura Ven

"The CFS Foundation Team Combines Passion, Experise & Proven Record."

Laura is one of the funding members of the Chronic Fatigue Syndrome Foundation, she also is Founder and CEO of Group-1-Engineering, Project X Open Source, and has + 15 years of experince in Engineering, Operations, Non for Profit Organizations

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Faq

Frequently asked questions

If you have any other questions, please get in touch using the contact form below.

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (referred as to in this preamble as 'CFS‘ or ‘ME/ CFS’ is a serious, chronic, complex, and systemic disease that frequently and dramatically limits the activities of affected patients. A chronic disease that persists for decades and leaves 1⁄4 of individuals housebound or bedbound, often for years. Fifthy to seventy five percent of individuals with Chronic Fatigue Syndrome cannot work or attend school

The cause is unknown,there is no diagnostic test. While the cause of chronic fatigue syndrome remains unknown, there are many theories — ranging from viral infections to psychological stress as the cause. Some experts believe chronic fatigue syndrome might be triggered by a combination of factors.

Signs and symptoms may include: Fatigue; Loss of memory or concentration; Sore throat; Enlarged lymph nodes in your neck or armpits; Unexplained muscle or joint pain; Headaches; Unrefreshing sleep; Extreme exhaustion lasting more than 24 hours after physical or mental exercise

Though CFS can sometimes develop after a viral infection, no single type of infection has been found to cause CFS. Some viral infections that have been studied in relation to CFS include: Epstein-Barr virus (EBV) ; Human herpesvirus 6 ; Ross River virus (RRV) ; Rubella. Age - Chronic fatigue syndrome can occur at any age, but it most commonly affects people in their 40s and 50s. Gender - Women are diagnosed with chronic fatigue syndrome much more often than men, but it may be that women are simply more likely to report their symptoms to a doctor. Stress - Difficulty managing stress may contribute to the development of chronic fatigue syndrome. Complications - Possible complications of chronic fatigue syndrome include: Depression; Social isolation; Lifestyle restrictions;Increased work absences.

So far no cure has been found for chronic fatigue syndrome, although very little research has been done.

Treatment for CFS focuses on symptom relief only. The most common therapy used is two-pronged approach, which combines cognitive training with a cater exercise program by a professional physical therapist. Although treatment for CFS has not been approved by the Food and Drug Administration

As per the Mayo Clinic publication, "Many alternative therapies have been promoted for chronic fatigue syndrome. It's difficult to determine whether these therapies actually work, partly because the symptoms of chronic fatigue syndrome often respond to placebos"

As per the Mayo Clinic, these are some questions you should ask when diagnosed: On what basis you make the diagnosis of chronic fatigue syndrome? Are there any treatments or lifestyle changes that could help my symptoms now? Do you have any printed materials I can take with me? What websites do you recommend? What activity level should I aim for while we're seeking a treatment? Do you recommend that I also see a mental health provider? Can you recommend a mental helth provider who has deal with other CFS patients?

50 to 75 percent of individuals with CFS cannot work or attend school. Depression is usually a result of CFS patients life change.

The time frame is unknown, although some people have recored with in one to two years, but Chronic Fatigue Sydrome can persists for decades, and leaves 1⁄4 of individuals housebound and sometimes bedbound for years

Most likely, the patient will crash, which can result from days to six months on bed, there are no time frames as very little studies exist.

CFS, paralizes the lives of the patients, that is the rason many doctors recommend patient to get mental help. "It was like being buried alive,” said Jo Marchant who tells the story of Samantha Miller, in the book CURE, which tells the story of now cure CFS patient

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Contact

Get In Touch

Any question about CFS Foundation? Reach out to us and we’ll get back to you shortly.

If you have sucidal thoughts, please contact the National Suicide Prevention Lifeline at 1-800-273-8255
  • +1 (646) 847-0806
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